Dear Phantom 5 - Too Young to Be the Eldest
Dear Temple,
You’re
making it sound as though something terrible happened to me just because my
brothers were born. That’s not
fair! They didn’t do anything wrong by
being born, and my parents didn’t do anything wrong by having them (except that
they were twins, so that makes three of us when parents shouldn’t have more
than two children, but that was just an accident). Most older siblings get a new baby brother or
sister when they’re three, and most of them are fine with that.
My
parents didn’t neglect me or stop loving me.
They’re the best parents in the world!
Don’t you dare blame them just because I’m weird! I’m weird because I’m autistic, not because
of anything they did wrong.
Phantom
of the Library
Dear Phantom,
I didn’t mean to
sound as though I was blaming mum or dad.
They are good parents, and it helped that at that stage, mum’s father
lived on the floor below us. All three
of them did their best. Mum was
exhausted with looking after two babies who never slept at the same time as
each other, but she made time to read stories to you and even teach you to
read. Dad had to work long hours, but he
still made time to take you out for walks and play that the tree in the field
beyond the woods was a dragon or a ship, and make up stories about your cuddly toy
animals. Grampy wasn’t mobile enough to
get down on his hands and knees to play with you, considering that he had a
missing leg and a lot of shrapnel painfully lodged in the remaining one, but he
was always willing to make you a mug of milky coffee and a bowl of porridge
with marmalade as you called in on him on your way out to the garden. But that doesn’t alter the fact that you went
from being a child who got lots of attention to one who spent most of her time
wandering around the big, overgrown garden on her own.
Obviously, it
isn’t mum and dad’s fault that you are autistic. But autistic people can also have psychological
and emotional problems, just like anyone else – except that the things that we
get upset about aren’t necessarily the ones that would upset anyone else.
You are right
that most three-year-old children cope with the arrival of a new baby without
being traumatised. But then, most
three-year-olds are either starting to make friends their own age, so that they
are less emotionally dependent on their parents, or they are confident enough
to fight for their share of their parents’ attention, often by causing so much
trouble that their parents have to
notice them.
You tried, for a
while. Mum says she remembers a time
when we left a trail of washing-up liquid all over the house. I don’t remember that, but I do have one
vivid memory:
You had weed on
the floor. Mum could have understood if
it had been an accident, but you just hadn’t felt like using the potty. Mum, exasperated, is exclaiming, ‘The potty
was just three feet away from you! So
why couldn’t you get up on your two
feet and walk over to it?’
You don’t really
know why you didn’t, except that weeing on the floor had seemed like a good
idea at the time. You’re not really very
interested, even by the pun about feet, even though you love puns. Instead, you are looking past mum, at the row
of glass jars filled with foods bought loose from the wholefoods co-operative
in the village: pasta, haricot beans, kidney beans, prunes, apricots, raisins,
sultanas. You know that prunes are dried
plums, and that raisins are dried grapes and so are sultanas. You wonder why raisins are dark brown and
sultanas are light brown. You know that
you did something naughty, and you know that you’re probably going to be
punished. You decide that probably
raisins are made from purple grapes and sultanas are made from green grapes.
Looking back, I
think I can guess why you had weed on the floor, and mum could certainly have
worked it out if she hadn’t been exhausted from weeks of sleep
deprivation. You had noticed that babies
get attention, and that older children who are able to care for themselves get
much less attention. Behaving in a more
babyish way was a fairly obvious attempt to put things back to the way they used
to be. Unfortunately, it didn’t get you
what you really wanted, which was stability and security.
Mum doesn’t
remember that time. But she remembers
the time that the old man from next door brought you in after he found you in
the middle of the busy main road. At
first, she thought that you had probably wandered out there because you had
misunderstood her warnings. After all,
she had only told you not to go down the drive and into the road by yourself;
she hadn’t actually told you not to squeeze through a gap in the hedge and go
out that way! Most young children, not
just autistic ones, tend to be very literal-minded about rules.
But later on,
she overheard you talking about the incident to yourself, discussing how you
knew you weren’t supposed to go into the road on your own, but Mummy was busy
with the babies and you were very sad.
In other words, you were quite possibly trying to kill yourself.
So, it
definitely sounds as though you were pretty badly traumatised by suddenly being
an older sister. That doesn’t make it your
brothers’ fault, or your parents’ fault (they couldn’t have known how you would
react). But it’s there, all the
same. Did you know that it’s even in
your records that you didn’t even grow
for a year between the ages of three and four?
How much of a shock does it take to make a three-year-old stop growing?
Okay, it didn’t
stop you growing into a tall, well-built, physically healthy child as you got
older, and you’re certainly not anorexic.
But I think the same anxieties which made you stop growing in physical
height for a short while, made you frightened of growing in emotional maturity
for much longer.
I think it made
you feel that being three years old meant that you were already intrinsically
less lovable than a baby and that not even your own parents could be relied on
to like you best, and therefore that nobody else could be expected to want to
be your friend. So you expected to be
lonely all your life. Many of the points
that would be exciting markers of independence for most young people – starting
school, becoming a teenager, going on holiday without parents, going away to
university, leaving home – can feel to us like being more and more cut off from
the only people we can trust to love us, namely parents.
Once you
realised that dying wasn’t a solution and neither was behaving like a baby, you
tried to adjust. When you asked mum to
tell you a story and she was too tired to think one up, she suggested you tell
yourself a story, so you did. You
wondered what it should be about, and it occurred to you that grown-ups like to
make-believe that a long time ago, they used to be children, and so you could make
up a story about something equally unlikely, imagining that a long time ago,
you used to be a grown-up. ‘A long time ago, when I was grown-up, I had
a little girl called Nellelli…’
I don’t know
where you go the name ‘Nellelli’ from, but I think it was from the song ‘Nelly
the Elephant’. In the Nellelli stories,
you were not only a parent (a single parent – I don’t recall there ever being a
mention of Nellelli’s father) but also a vet, carrying out gruesome-sounding
operations to restore an injured kitten’s sight by transplanting a dead kitten’s
eyeballs into his head. You were
confident and competent in your fantasy, even while you dreaded growing up in
real life. It wasn’t that you wanted to
be a vet in real life, but you were starting to realise that you wanted to be a
writer.
At the same
time, one thing mum did have time to do with you was reading practice. She was impressed that, after she had taught
you how to recognise colourful plastic letters with magnets in their backs, you
worked out for yourself how to arrange them on the floor to spell ‘cat’, ‘dog’,
and ‘mungkee’. With the aid of games
(using a magnet on a string to catch paper fish with paper-clips on
their noses and words on their backs) and a bit of bribery (Smarties for making your way through
Ladybird Peter and Jane books), you
soon learned to be a confident reader.
Mum says the
first book we ever read (other than Ladybird primers) was Harry by the Sea by Gene Zion.
I remember the book, about a dog who gets lost at the seaside, even if I
don’t remember reading it for the first time.
But I do remember the first chapter-book we ever read, The Cat Who Wanted to Go Home by Jill
Tomlinson, about a French fisherman’s cat who gets stranded in England and
needs to find a way to cross the Channel back to her humans. You found it at a car boot sale, one hot
summer day when you were four, along with a glass model cat with blue paws and
tail, shortly before you started school.
I particularly
remember the heroine being found a foster-home by a charity that you were convinced
was called ‘Ruh-spuck-ah,’ no matter how many times mum insisted that it was
pronounced ‘Ar-ess-pee-see-ay.’ After
all, you’d been reading for long enough to know
that you say the letter sounds, not the letter names!
So, you were
getting used to being lonely, and discovering that you liked telling
stories. You were also discovering that
you were good at learning to read and that books were a way of getting mum’s
attention in a good way. You knew that
she was pleased that you were clever, and so you wanted to please her by
getting things right. And because
getting things right, and hanging on to what you had been taught, were so
important to you, sometimes you weren’t willing to admit that things you had
learned were not universal rules, and that sometimes a word like RSPCA might
actually be pronounced by sounding out the letter names.
Now, maybe it’s
time to start realising that real
intelligence means being willing to learn that some of the things you thought
you knew might not always be true. That
way, you have a chance of learning to be wiser, instead of just older. And you might even find out that ‘wiser’ does
not always mean ‘sadder’.
Love,
Temple Cloud
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